acnc listing





Ron Heinrich
Dept Chair

Huntington's SA & NT Association is a non-profit organisation managed by a voluntary board and is a member of the Australian National Huntington's Association, a loose collective of state Associations, which facilitates the sharing of information resources, policy development, benchmarking in service delivery and provides a conduit for current research developments.
Janet Andrewartha Treasurer

Stephen Brewster

Sam Nunn

Huntington's SA & NT was formed in February 2015 out of a community need for an organisation that will help identify and address the unmet needs of those people in South Australia and Northern Territory adversely affected by Huntington’s Disease. 

​It is the aim of this website to provide information about HD and where you can go to access help and support.


Our Vision is to provide a full and confidential range of support and services to the Huntington’s disease Community that will include counselling, advocacy, accommodation, education and research while promoting awareness to the wider community

News & Events
Huntington’s SA & NT Inc. will be guided in practice and procedure by the principles of PURPOSE, AUTONOMY and MASTERY

​May is HD Awareness month. Watch this space for what the association has planned.

Come and enjoy HD COFFEE & CO., every Wednesday from 1.00 till 3.00 at the office. All welcome.
Regular meet-ups for dinner happening in the Southern and Northern suburbs of Adelaide.


About Us
Rhonda Rowe

Chris Glasson



​We are proud to announce and would like to introduce you to our Patron, the Honourable Peter Goers. We look forward to a wonderful partnership. 

Michele Giles-Clark
Public Officer & General Manager

Dr Elizabeth Thompson

“I’m thrilled and honoured to be Patron of Huntington’s SA and NT and hope to work with staff, volunteers, sufferers and carers to bring awareness and understanding. I look forward to working with you all” - Peter Goers OAM

Meet the board

View or Download Huntington's SA&NT Inc Documents Here:

Huntington's SA & NT

Mission Statement