acnc listing






Ron Heinrich
Dept Chair

Huntington's SA & NT Association is a non-profit organisation managed by a voluntary board and is a member of the Australian National Huntington's Association, a loose collective of state Associations, which facilitates the sharing of information resources, policy development, benchmarking in service delivery and provides a conduit for current research developments.
Janet Andrewartha Treasurer

Stephen Brewster

Sam Nunn

Huntington's SA & NT was formed in February 2015 out of a community need for an organisation that will help identify and address the unmet needs of those people in South Australia and Northern Territory adversely affected by Huntington’s Disease. 

​It is the aim of this website to provide information about HD and where you can go to access help and support.

Our Patron's

Our Vision is to provide a full and confidential range of support and services to the Huntington’s disease Community that will include counselling, advocacy, accommodation, education and research while promoting awareness to the wider community

News & Events
Huntington’s SA & NT Inc. will be guided in practice and procedure by the principles of PURPOSE, AUTONOMY and MASTERY

​May is HD Awareness month. Watch this space for what the association has planned.

Come and enjoy HD COFFEE & CO., every second Wednesday from 1.00 till 3.00 at the office. All welcome.
Regular meet-ups for dinner happening in the Southern and Northern suburbs of Adelaide.


About Us
Rhonda Rowe

Chris Glasson


Click Event for Details:


​We are proud to announce and would like to introduce you to our Patron's, the Honourable Peter Goers and the dynamic Anne Wills. We look forward to a wonderful partnership with both Peter and Anne.

Michele Giles-Clark
Public Officer & General Manager

Dr Elizabeth Thompson

Meet the board

View or Download Huntington's SA&NT Inc Documents Here:

Huntington's SA & NT

Mission Statement